{"id":10327,"date":"2025-05-13T08:24:59","date_gmt":"2025-05-13T08:24:59","guid":{"rendered":"https:\/\/blogemergencias.es\/index.php\/2025\/05\/13\/el-50-de-ninos-con-una-enfermedad-rara-carece-de-diagnostico-para-los-padres-es-muy-inquietante\/"},"modified":"2025-05-13T08:24:59","modified_gmt":"2025-05-13T08:24:59","slug":"el-50-de-ninos-con-una-enfermedad-rara-carece-de-diagnostico-para-los-padres-es-muy-inquietante","status":"publish","type":"post","link":"https:\/\/blogemergencias.es\/index.php\/2025\/05\/13\/el-50-de-ninos-con-una-enfermedad-rara-carece-de-diagnostico-para-los-padres-es-muy-inquietante\/","title":{"rendered":"El 50% de ni\u00f1os con una enfermedad rara carece de diagn\u00f3stico: "Para los padres, es muy inquietante""},"content":{"rendered":"

<\/p>\n

Uno de cada dos<\/strong> ni\u00f1os <\/strong>(es decir, la mitad) <\/strong>con una <\/strong>enfermedad rara<\/strong><\/a> <\/strong>sospechosa de tener una base gen\u00e9tica<\/strong> carece de un diagn\u00f3stico<\/strong> preciso. Para las familias, desconocer qu\u00e9 le pasa a su peque\u00f1o es no solo \u00abdoloroso\u00bb, sino \u00abinquietante\u00bb. \u00abLa incertidumbre es m\u00e1xima\u00bb, <\/strong>explica a EL PERI\u00d3DICO Encarna Guill\u00e9n, <\/strong>jefa del \u00c1rea de Gen\u00e9tica del Hospital Sant Joan de D\u00e9u<\/a> (Esplugues de Llobregat). <\/p>\n

Seguir leyendo…<\/a>.<\/p>\n

source<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Uno de cada dos ni\u00f1os (es decir, la mitad) con una enfermedad rara sospechosa de tener una base<\/p>\n","protected":false},"author":1,"featured_media":12677,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"_joinchat":[],"footnotes":""},"categories":[1],"tags":[],"class_list":["post-10327","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"featured_image_urls":{"full":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=1920&resize=1920,998&ssl=1",1920,998,false],"thumbnail":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=150&resize=150,150&ssl=1",150,150,false],"medium":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=300&resize=300,300&ssl=1",300,300,false],"medium_large":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=768&resize=768,0&ssl=1",768,0,false],"large":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=1024&resize=1024,1024&ssl=1",1024,1024,false],"1536x1536":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=1536&resize=1536,1536&ssl=1",1536,1536,false],"2048x2048":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=2048&resize=2048,2048&ssl=1",2048,2048,false],"morenews-large":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=825&resize=825,575&ssl=1",825,575,false],"morenews-medium":["https:\/\/i3.wp.com\/blogemergencias.es\/wp-content\/uploads\/2025\/02\/IMAGEN-ESTANDAR-BLOGEMERGENCIAS-ENTRADAS.png?w=590&resize=590,410&ssl=1",590,410,false]},"author_info":{"info":["admin"]},"category_info":"Noticias<\/a>","tag_info":"Noticias","comment_count":0,"_links":{"self":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/posts\/10327","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/comments?post=10327"}],"version-history":[{"count":0,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/posts\/10327\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/media\/12677"}],"wp:attachment":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/media?parent=10327"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/categories?post=10327"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/tags?post=10327"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}