{"id":31207,"date":"2026-03-29T12:23:39","date_gmt":"2026-03-29T12:23:39","guid":{"rendered":"https:\/\/blogemergencias.es\/index.php\/2026\/03\/29\/esther-selles-fundacio-miquel-valls-sin-la-figura-de-juan-carlos-unzue-no-tendriamos-la-ley-ela\/"},"modified":"2026-03-29T12:23:39","modified_gmt":"2026-03-29T12:23:39","slug":"esther-selles-fundacio-miquel-valls-sin-la-figura-de-juan-carlos-unzue-no-tendriamos-la-ley-ela","status":"publish","type":"post","link":"https:\/\/blogemergencias.es\/index.php\/2026\/03\/29\/esther-selles-fundacio-miquel-valls-sin-la-figura-de-juan-carlos-unzue-no-tendriamos-la-ley-ela\/","title":{"rendered":"Esther Sell\u00e9s, Fundaci\u00f3 Miquel Valls: Sin la figura de Juan Carlos Unzu\u00e9, no tendr\u00edamos la Ley ELA"},"content":{"rendered":"<div data-nosnippet=\"\" data-id=\"closeContentContainer\"><!--[--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text ft-helper-closenews\">Hoy se sienta en la silla de invitados del MAS BARCELONA\u00a0<strong>Esther Sell\u00e9s<\/strong>, Directora General de la\u00a0<strong>Fundaci\u00f3 Catalana d&#8217;ELA Miquel Valls<\/strong>, una entidad dedicada a acompa\u00f1ar (\u00e9sta es la palabra: acompa\u00f1ar) a personas afectadas por la Esclerosis Lateral Amiotr\u00f2fica (ELA) y a sus familias. Esther trabaja por mejorar la calidad de vida de estas personas y sus familias, dar visibilidad a la enfermedad e impulsar la investigaci\u00f3n.<\/p>\n<p><!--]--><!----><!----><!----><!----><!----><!----><!----><!----><!----><\/p>\n<aside class=\"ft-ad ft-ad--roba ft-ad--robaNotext ft-helper-hide-md\" style=\"\"\/><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text\">En Catalunya est\u00e1n afectadas de ELA cerca de 800 personas. A Juan Carlos Unzu\u00e9 lo aprecia much\u00edsimo, y tiene claro que\u00a0<strong>\u201csin \u00e9l no tendr\u00edamos LEY.\u00a0\u00a0\u00c9l ha sido quien ha hecho que nos escuchen, que los medios y los pol\u00edticos se muevan\u2026. Ha dado mucha visibilidad a la enfermedad y con su presencia se han recaudado m\u00e1s de 3 millones de euros para investigaci\u00f3n. Tenemos que darle las gracias a Juan Carlos\u201d.<\/strong><\/p>\n<p><!--]--><!----><!----><!----><!----><!----><!--[--><!----><!----><!--]--><!----><!----><!----><!----><!----><!--[--><!--[--><\/p>\n<aside class=\"ft-ad ft-ad--intext ft-helper-hide-md\"\/><!--]--><!--[--><\/p>\n<aside class=\"ft-ad ft-ad--intext  ft-helper-hide-xs\"\/><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text\">Pero pasan los a\u00f1os y todos nos seguimos preguntando el porqu\u00e9. Y todav\u00eda se desconocen las causas, que son multifactoriales. \u201c<strong>Bueno, el contacto con qu\u00edmicos puede ser una; el factor ambiental,\u00a0\u00a0otro; el stress o el estilo de vida puede ser otra causa\u2026 Ojal\u00e1 en las escuelas, desde que los ni\u00f1os son peque\u00f1os, nos eduquen emocionalmente a no generar expectativas y poder tener una resiliencia y una flexibilidad mental y emocional para adaptarnos a todo aquello que nos puede traer la vida\u201d.\u00a0\u00a0<\/strong><\/p>\n<p><!--]--><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text\">En la Fundaci\u00f3 Miquel Valls existe un grupo de 30 profesionales que se dedican a atender cada d\u00eda las necesidades de las personas afectadas por ELA y de sus familias, tanto en sus casas, telef\u00f3nicamente o en las unidades de ELA existentes en Catalunya. Y este es su d\u00eda a d\u00eda.\u00a0<\/p>\n<p><!--]--><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><\/p>\n<aside class=\"ft-ad ft-ad--roba ft-ad--robaNotext ft-helper-hide-md\" style=\"\"\/><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!----><!----><!----><!----><\/p>\n<h3 class=\"ft-helper-spacer-t-xs ft-helper-fontSize-heading-XS\">La eutanasia<\/h3>\n<p><!----><!----><!----><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text\">La realidad nos indica que la persona que sufre ELA se quedaba en casa y tanto la cura como el tratamiento recae en la familia, dado que la LEY de la dependencia cubre muy poco. Entonces llega un punto en el que las curas son 24 horas, y existen enfermos que no pueden m\u00e1s porque no quieren ser una carga para sus familias y piden la eutanasia.\u00a0<\/p>\n<p><!--]--><\/p>\n<figure class=\"ft-img\" data-aida-image=\"\"><picture><!--[--><!--[--><source media=\"(min-width:640.1px)\" srcset=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_16-9-discover-aspect-ratio_default_0_x1152y511.webp\" type=\"image\/webp\" width=\"1200\" height=\"675\"><source media=\"(min-width: 320.1px) and (max-width: 640px)\" srcset=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_16-9-discover-aspect-ratio_640w_0_x1152y511.webp\" type=\"image\/webp\" width=\"640\" height=\"360\"><source media=\"(max-width: 320px)\" srcset=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_16-9-discover-aspect-ratio_320w_0_x1152y511.webp\" type=\"image\/webp\" width=\"320\" height=\"180\"><source media=\"(min-width:640.1px)\" srcset=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_16-9-discover-aspect-ratio_default_0_x1152y511.jpg\" type=\"image\/jpeg\" width=\"1200\" height=\"675\" data-aida-photoclipping=\"\"><source media=\"(min-width: 320.1px) and (max-width: 640px)\" srcset=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_16-9-discover-aspect-ratio_640w_0_x1152y511.jpg\" type=\"image\/jpeg\" width=\"640\" height=\"360\" data-aida-photoclipping=\"\"><source media=\"(max-width: 320px)\" srcset=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_16-9-discover-aspect-ratio_320w_0_x1152y511.jpg\" type=\"image\/jpeg\" width=\"320\" height=\"180\" data-aida-photoclipping=\"\"><!--]--><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/estaticos-cdn.prensaiberica.es\/clip\/ccb23087-dfb1-4e4a-a676-91b9f17031db_alta-libre-aspect-ratio_default_0_x1152y511.jpg\" width=\"1200\" height=\"800\" alt=\"Sergi Mas y Esther Sell\u00e9s en el estudio de El Peri\u00f3dico.\" class=\"ft-helper-img-rd\" loading=\"lazy\" fetchpriority=\"auto\"\/><!--]--><\/source><\/source><\/source><\/source><\/source><\/source><\/picture><figcaption data-aida-caption=\"\">\n<p class=\"ft-helper-fontColor-quaternary ft-helper-fontSize-body-S ft-helper-spacer-t-xxs\">Sergi Mas y Esther Sell\u00e9s en el estudio de El Peri\u00f3dico. <span class=\"ft-helper-fontWeight-800 ft-helper-text-transform-uppercase\" data-aida-captionauthor=\"\"><!--[--><!--[--> \/ M\u00f2nica Tudela<!--]--><!--]--><\/span><\/p>\n<\/figcaption><\/figure>\n<p><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text\">La parte de la ayuda de esta ley ELA consiste en una supervisi\u00f3n de 24 horas, a causa de un riesgo de muerte habitable: a un enfermo de ELA no se le puede dejar solo un minuto, porque si la m\u00e1quina de ventilaci\u00f3n que lleva enganchada a la boca se le cae y no tiene posibilidad para recogerla, en tres minutos se ahoga. Y se muere.\u00a0<strong>\u201cY esto nos ha pasado<\/strong>\u201d, subraya Esther.<\/p>\n<p><!--]--><!----><!----><!----><!----><!----><!--[--><!----><!----><!--]--><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><\/p>\n<aside class=\"ft-ad ft-ad--intext ft-helper-hide-md\"\/><!--]--><!--[--><\/p>\n<aside class=\"ft-ad ft-ad--intext  ft-helper-hide-xs\"\/><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!----><!----><!----><!----><\/p>\n<h3 class=\"ft-helper-spacer-t-xs ft-helper-fontSize-heading-XS\">D\u00f3nde ver y escuchar Mas Barcelona<\/h3>\n<p><!----><!----><!----><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--[--><!----><!----><!--[--><\/p>\n<p class=\"ft-text\">El\u00a0<strong>videop\u00f3dcast &#8216;Mas Barcelona&#8217;<\/strong>\u00a0se puede ver y escuchar en las principales plataformas: <a class=\"ft-link ft-link--decoration\" href=\"https:\/\/open.spotify.com\/show\/3076L7gBN9kFcIJ62dvc7r\" target=\"_blank\" rel=\"nofollow\">Spotify<\/a>, <a class=\"ft-link ft-link--decoration broken_link\" href=\"https:\/\/www.youtube.com\/playlist?list=PLs66PTSPhqMLvvOXeXLSAThG0io6dmwyY\" target=\"_blank\" rel=\"nofollow\">Youtube,<\/a> <a class=\"ft-link ft-link--decoration\" href=\"https:\/\/www.ivoox.com\/podcast-mas-barcelona_sq_f12477787_1.html\" target=\"_blank\" rel=\"nofollow\">ivoox<\/a>, <a class=\"ft-link ft-link--decoration\" href=\"https:\/\/podcasts.apple.com\/us\/podcast\/mas-barcelona\/id1772278402\" target=\"_blank\" rel=\"nofollow\">Apple Podcast<\/a>, <a class=\"ft-link ft-link--decoration\" href=\"https:\/\/music.amazon.es\/podcasts\/07737d75-7bbb-40d8-9b2d-556b0a087dab\/mas-barcelona\" target=\"_blank\" rel=\"nofollow\">Amazon Podcast<\/a> y <a class=\"ft-link ft-link--decoration\" href=\"https:\/\/podimo.com\/es\/shows\/mas-barcelona?pmo_aff=true\" target=\"_blank\" rel=\"nofollow\">Podimo<\/a>.<\/p>\n<p><!--]--><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!----><!--[--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--[--><!----><!--]--><!--]--><!----><!----><!--]--><!--]--><\/p>\n<p data-close=\"closedContent\" class=\"subscribeHideForDisplay\">Suscr\u00edbete para seguir leyendo<\/p>\n<\/div>\n<p><a href=\"https:\/\/www.elperiodico.com\/es\/sanidad\/20260329\/esther-selles-juan-carlos-unzue-fundacio-miquel-valls-128454173?utm_source=rss-noticias&amp;utm_medium=feed&amp;utm_campaign=sanidad\" class=\"broken_link\">source<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Hoy se sienta en la silla de invitados del MAS BARCELONA\u00a0Esther Sell\u00e9s, Directora General de la\u00a0Fundaci\u00f3 Catalana d&#8217;ELA<\/p>\n","protected":false},"author":1,"featured_media":31208,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"_joinchat":[],"footnotes":""},"categories":[1],"tags":[],"class_list":["post-31207","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"featured_image_urls":{"full":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688.png",1200,800,false],"thumbnail":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688-150x150.png",150,150,true],"medium":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688-300x200.png",300,200,true],"medium_large":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688-768x512.png",640,427,true],"large":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688-1024x683.png",640,427,true],"1536x1536":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688.png",1200,800,false],"2048x2048":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688.png",1200,800,false],"morenews-large":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688-825x575.png",825,575,true],"morenews-medium":["https:\/\/blogemergencias.es\/wp-content\/uploads\/2026\/03\/wp-header-logo-688-590x410.png",590,410,true]},"author_info":{"info":["admin"]},"category_info":"<a href=\"https:\/\/blogemergencias.es\/index.php\/category\/noticias\/\" rel=\"category tag\">Noticias<\/a>","tag_info":"Noticias","comment_count":0,"_links":{"self":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/posts\/31207","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/comments?post=31207"}],"version-history":[{"count":0,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/posts\/31207\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/media\/31208"}],"wp:attachment":[{"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/media?parent=31207"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/categories?post=31207"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogemergencias.es\/index.php\/wp-json\/wp\/v2\/tags?post=31207"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}